• Mon, Mar 26 2012

We Spoke To A Woman Who Has 100 Orgasms A Day.

Bella is a woman who orgasms when someone touches her hand. We interviewed her about how it affects her. Not just little orgasms. Full on twitchy-moan-y orgasms. Feather light touch especially sends her over the edge. She has what is called Persistent Sexual Arousal Syndrome or Restless Genital Syndrome– which means she orgasms without control, spontaneously. During college, she kept tallies in her notebook of how many times it happened a day. With PSAS it can easily get into the hundreds.

Bella’s life might sound like a cheezy literotica entry, but for her it isn’t so sexy. Imagine sensing an orgasm come on while being called on in class. Or while hugging a family member. Bella has a surprising good sense of humor about the whole thing. She has had to learn to deal.

So some quick medical background stuff: PSAS only affects women. It is not related to nymphomania– often the last thing these women want is penetrative sex as the condition can leave you with constant genital pain and burning. Doctors have yet to really pin-point a cause but irregularity in sensory nerves (or nerve damage) is the go-to assessment. There isn’t a sure-fire cure.

Bella’s symptoms have eased in the last few years, but it still happens. Orgasm. Unexpectedly. Suddenly.  Here, I chat with Bella about what life with constant orgasms is like.

So you can have an orgasm without genital contact. That sounds sort of alluring to most of us!

It sounds kind of nifty… and it would be if I could control it but I can’t. Touch is fraught for me. I can’t just let it happen. Like, when I say I can’t be tickled I really mean it! It also feels more intense than an orgasm brought on purposefully, because it is unwanted.

The first time I met my now boyfriend, we were walking down the street and I felt it coming on. I warned him, “seriously don’t touch me” and then he playfully punched me in the arm. That just set me off. It is one of those things, you have to see to believe. My legs gave out and I leaned against the nearest thing, a lamp-post or whatever. I was totally mortified. This was someone I liked! But he took it well.

What else sets it off?

Musky colognes used to be automatic triggers. I would walk down the street and collapse because someone was wearing strong cologne. Some perfumes too. I am really glad my legs don’t go out from under me anymore. I used to wonder what would happen if I was crossing the street. Would someone take me to a hospital?

Darkness is a big trigger which is why movies are bad. Songs and any vibrations are a problem. I am finding I can do public buses now, which for years was impossible. Cars are still hard. The backseat is not okay.

I went on a roadtrip with my friends and I had shot-gun the entire time which wasn’t cool for them, but if I didn’t there would have been a lot of…awkwardness.

What do you do when it happens around other people?

Things that I don’t want to be sexual suddenly become sexual. And here is what sucks: the more comfortable I am with you, the more likely it is to happen around you.

So, when it first started happening and I had no idea what was going on and I told my uncle, because he’s a psychologist. I thought he might be able to recommend someone who could help me. I was desperate. And in explaining it, I just ended up  just telling him everything.

From then on it would just happen around him. I remember sitting in my Grandmother’s kitchen having a conversation with my uncle that was punctuated by orgasms. When it happens around family, it just feels so skeezy! Ugh!

Friends who know– their inclination is to offer closeness and comfort when they see it is happening. But that makes it worse. That is one of the big problems–people want to get closer, and offer support but that makes it worse.

So, let’s go back to that time when it started happening…

I had no idea what it was. I told my parents I was dealing with some stuff and I needed to talk to a professional.  It had been getting to the point where I couldn’t sleep at night, because it was happening so frequently. It was painful and I was, frankly, high from orgasming all the time. I couldn’t do my homework. I can’t remember what I told my mother but she was uncomfortable. I think I said ‘I am having some…sensations.’ [tagbox tag="orgasms"]

There had not been any articles written about it yet. I saw a  gynecologist, I saw a psychiatrist. The psychiatrist thought I was bi-polar and the gynecologist thought I was crazy. No one could help me or even validate that this was a thing.

It made me pretty depressed. There was no support group back then and I just needed to talk about it. I think I made a lot of my friends uncomfortable. I kept them on rotation, burning them out one at a time, talking endlessly about my body and how it was sabotaging me.

Later it got really bad. I ended up taking medical leave from college.

So this started while you were in highschool, and you mentioned the first one came during class?

Yep. It happened in high school. It was happening multiple times a day but at first it was not vocal, so I could just put my head down. But then it got worse, with noise, so I passed it off as overactive bladder syndrome, I would just lock myself in a stall and let it course through.

When it would happen in public, I spent a lot of time training myself to throw my head forward against my natural reflex to throw it back. If you throw your head back you will call more attention to yourself.

Did you know it was an orgasm at first? Had you had an orgasm before this?

I had never had an orgasm before! I didn’t have any experience to draw from to know what was going on. I was like, ‘why am I having spasms?’ But it only took about a month of googling things to realize this thing sounded like an orgasm. But still, I was confused because spontaneous orgasm doesn’t exist. The only thing I could find was erotic fan fiction. I was like great, I don’t exist and I am fetish!

So how did you finally figure out what this thing was?

For a while I was just telling everyone I knew or met because I was so desperate. Then a friend of a friend ,who ran a forum that posted strange news, found the Boston Globe article. The article profiled a doctor who had found this disorder among several women.

How did you get diagnosed?

I looked up the doctor in the article and left an incoherent voicemail, like “I read an article in the Boston Globe today” just sobbing and hiccuping in between words.

It took some pushing but I got an appointment. As I was geting tested the doctor was trying not to curse, he kept being like “holy crap! Are you aroused right now?” My blood-flow was off the charts. I was a medical anomaly.

I was laying there exposed from the waist down with a room full of people–the doctor, nurses and a ton of interns. I don’t like being seen naked, but when are these interns going to get another chance to see this? I don’t want other people to go through what I went through. And I am pretty sure there are still people out there being told they are crazy.

So for you, living with this, things have gotten better?

The only steady thing about the condition is that it changes. For a while I was only getting them at night. Now, I have become less sensitive to buses and other triggers. And I’ve learned reduction strategies. If there is going to be hugging, I need to decide when it starts. All of touch becomes something I have to coordinate and orchestrate. I’ve learned to harden my skin in a way, when I know touch is going to happen.

And there is a support forum which is good. One way I’ve been active there is to tell the Christian members they are not going to Hell!

I also met other women when I did a TV documentary that aired in the UK. At least it was supposed to only air in the UK. One night my Dad one night was like, ‘I don’t mean to embarrass you but there is a documentary on…. I was like, ‘oh my god, Dad. That is my documentary, I am in that documentary!’ And we had this awkward moment where we didn’t finish our sentences and both just walked out of the room.

I have a small voice in the world for people who might not know what is wrong with them, and that is important.

Oh, and now that you are dating, does your boyfriend ever set you off on purpose?

I mean, for me stroking my hand is a sexual act. Especially if it is done intentionally. It is sort of a game that my boyfriend plays. You can drag a finger across my skin and I’ll start giggling then I will start moaning then I’ll start doing both. I understand this is amusing for the person on the other end, but it is sorta conflicting for me. But he knows not to do it in public and that once I’ve had enough it’s over.

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Share This Post:
  • mish

    This sounds like it would actually be the worst.

  • mark

    I don’t believe this is a real condition.

    • Vic

      you’re an ignorant, of course you don’t believe it.

  • dd

    so fake its kind of insulting their readers by thinking we’ll believe this

    • Tiki

      this comment is an insult in itself. You FOOL. hahahaha. I bet you don’t believe in fairy tales either eh? ;)

  • Jinx

    This was very interesting! It is a real condition. I had heard of it before in one of my psychology classes but never learned about it in this much detail.

  • Sabs

    Haha, I love reading the comments section on any online article :) Trolls, trolls, and more trolls…

  • Hell yea !

    Oh yae ,, i think this lady will get 1000 Full orgasm’s if she got licked up ! . hehe^_*

  • randerson

    If only I could have 1 a day, I’d be happy!

  • Kim

    I can only presume the skeptical comments are coming from a position of ignorance about how atypical hardwired cerebral conditions can be more than just a minor distraction and can trigger all sorts of distinct reactions. Just because someone hasn’t experienced something doesn’t mean it doesn’t exist. Perhaps these comments originate inside tiny closed minds, a condition rumored to exist in segments of the population. They probably don’t believe in synaesthesia, or how disruptive certain sensory input can be for some of those on the aspergers spectrum, e.g., input from sound or touch. One is almost tempted to wish a malady like fibromyalgia or depression on the naysayers so they can enjoy being told that it’s all in their head.

  • Anna

    wow, I’ve never heard of it…

    Anna
    http://www.LucidNewYork.com

  • Adiel

    Wow! I never knew of such a condition, Persistent Sexual Arousal Syndrome sounds mortifying!

  • mark

    This person sounds in distress, I can’t imagine having to put up with such a condition for your entire life